Surprisingly, new studies show that patients with sickle cell disease are in poor health. Seriously malicious people are exposed to crime.
According to a large new cellulite treatment study, nearly half (46%) of patients said emergency care providers didn’t believe their symptoms and 48% said they were treated as drug explorers with A & E. I do.
Sickle cell disease (SCD) is a rare condition that causes pain in the red blood cells, causing extreme pain, long-term organ damage, and often premature death. It can affect blacks in the context of Africa and the Caribbean.
A new global study by Global Blood Therapeutics (GBT) aims to highlight the “unmet needs” of patients with sickle cell disease.
“Surveys show that SCD is a very complex disease for patients, carers and healthcare professionals alike,” said Sebastian Stachoviak, Director of Global Blood Treatment Europe and GCC.
“This report really highlights the difference in the quality of treatment between specialized seizure treatment and the treatment that patients can receive when they go to the emergency room.
In this study, conducted in 10 countries, including the United Kingdom, the United States, Canada, Germany, France, Brazil, and the GCC (UAE, Bahrain, Oman, Saudi Arabia), patients with sickle cell disease have “severe disabilities.” understand. Health Care System. Although medical professionals do not feel that they have knowledge of the disease or their patients to be able to treat them properly.
Most people with sickle cell disease are of African or Caribbean descent and usually die between the ages of 40 and 45. GBT believes that earlier and deeper understanding and communication can help healthcare systems around the world support the health, well-being and longevity of patients.
A survey of 1,345 people, including those with SCDs, caregivers, and medical professionals, found that nearly 40% of patients were inappropriately treated by emergency medical professionals. This is believed to be due to ethnicity or socioeconomic background.
More than half (54%) of patients say they have experienced inadequate care from emergency medical professionals in the past due to a lack of knowledge about SCD.
The new findings follow a groundbreaking UK study in 2021 revealing evidence of “serious flaws” and racist attitudes in the care of sickle cell patients.
Last year’s report included evidence of poor care for sickle cell patients housed in general wards or A&Es, low awareness of sickle cell patients among medical professionals, inadequate training, and inadequate investment.
This new study suggests that this is not a UK-specific problem, but a systemic problem around the world.
The reality of living with a herd of cells
Aisato Bidford-King was born in Liberia and immigrated to the UK at the age of three. At the time, his mother was unaware of his daughter’s condition, but he had already experienced symptoms of sickle cell disease.
“Every time I was taken to the hospital, the doctor told my mother that I had malaria, that I was fine,” Aisatsu said.
Aisatsu eventually fell into her first crisis at the age of five and was eventually diagnosed with sickle cell disease. Then her family began testing for hereditary diseases and began educating themselves about the condition. Sickle cell disease training is lacking at Isatu in the UK and worldwide.
“I had some negative experiences with parasitic cell treatment, especially A&E,” Aisatu said.
“The nurse told me I was exaggerating my pain. Others wouldn’t listen to me when I explained what worked and what didn’t. It makes me feel less, maybe my pain feels bad and I’m just wasting my time.
“It really offends me when I have to experience something like this.”
Aisatsu says that it is very difficult to affect parasitic cells with family and friends.
“The mental health aspect of sickle cell should be my biggest fight,” she adds.
“People don’t understand what sickle cell is and how different environments can present a crisis to someone. People look to see if they have sickle cell traits. You need to know how to get tested to avoid passing it on to the next generation.
This idea led Aisatsu and her mother to start a charity called Africa Sickle Aid. They were able to send care packages to developing countries to help those without access to treatment or care services.
“My mother’s idea was to start a charity to understand my cells. I thank her, not everyone was so lucky.”
Aisatu is a global health fair regarding parasite cells to ensure parasite cell populations in developing countries are involved in their journey as someone in the group still remembers them. We are working to maintain.
What is sickle cell disease?
Sickle cell disease (SCD) is a rare condition that affects hemoglobin, a protein carried by red blood cells, which supplies oxygen throughout the body.
It is a persistent blood disorder that occurs when a person inherits a defective cell gene from their parents.
Because healthy red blood cells are disk-shaped and flexible, they can easily move through blood vessels and carry oxygen to important organs.
However, in people with SCD, red blood cells become inflexible, hard, sticky, crescent-shaped, or scaly. The inflammatory process leads to the destruction of red blood cells, leading to hemolytic anemia (low supply of hemoglobin and hypoxia from the destruction of red blood cells in the body).
The squeezed red blood cells can damage the walls of the blood vessels and cause vascular disorders (injuries to small blood vessels) which, together with the squeezed red blood cells, cause the capillaries and small blood vessels to become clogged, leading to causes pain and blood flow. Oxygen supply to the whole body.
Patients with SCD have progressive and ongoing complications and serious illness, including damage to key organs such as the liver, kidneys, lungs, heart, and brain, which contributes to premature death and can reduce the family’s potential .
Chronic lack of mutual understanding between doctors.
According to one survey, nearly three-quarters (73%) of patients with low financial status may be “more difficult to deal with” when speaking with healthcare professionals.
Nearly a third (31%) of doctors and nurses have difficulty understanding the needs of their patients.
Only half (50%) of health professionals believe they have enough tools to manage the long-term damage caused by SCD.
For Sebastian of Global Blood Therapeutics, this issue addresses the lack of education among health professionals and the need for global change in all elements of the global health system.
“It’s very important that healthcare professionals understand the community, be open to paralyzed patients, spread the message and educate others to really understand it,” Sebastian told Sebastian.
You must be open to understanding the core beliefs of SCD patients and then working with the community to improve care and treatment and, as a result, improve the quality of life for the community. ..
“For me, it really is understanding, compassion, humility and working together when problems arise.
Sebastian said that for the prospects for sickle cell patients to really improve in the UK and beyond, a comprehensive solution is needed to support the health care system with the government.
“This study was global and was conducted in 10 countries and 4 continents, and the results of these findings were universal,” Sebastian said.
“So when I look at health care systems, it’s about the patients, the caregivers, the providers, and the governments that support them.
“This concerns the four stakeholders who are moving in the field of this disease and really follow through on priority projects and initiatives with a clear plan of action and further implementation.”
State of racial discrimination
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Source: Metro
I am currently a news writer for News Bulletin247 where I mostly cover sports news. I have always been interested in writing and it is something I am very passionate about. In my spare time, I enjoy reading and spending time with my family and friends.
