“These past two years have been such a challenge for me, the journey from discovering my condition to learning how to live with it,” she wrote on Instagram.
Celine Dion says her new documentary will detail her life with the stiff person syndrome (SPS) and her return to the shows.
While Celine Dion’s career is on ‘hold’ as she lives with Stiff Person Syndrome, a rare neurological disorder, she’s chronicling her journey in a new documentary titled “I Am: Celine Dion” and remains hopeful that one day she will be able to take the stage again.
“These past two years have been such a challenge for me, the journey from discovering my condition to learning how to live with it and manage it, but not let it define me,” she wrote on her Instagram page. “As the road to resuming my performing career continues, I’ve realized how much I’ve missed being able to see my fans.”
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She mentioned that she wanted to record this part of her life through her documentary, “to raise public awareness of this ‘unknown’ condition and help other people facing the same health problem”.
Dion announced in December 2022 that she was taking a “leave of absence” from her professional duties to focus on her health, after revealing her diagnosis of Stiff Person Syndrome. At the time, she said that the condition did not allow her to sing the way she is used to.
While she released new music and appeared in a film opposite Priyanka Chopra last year, a source close to Dion told CNN in late May that she “probably won’t be touring again.”
Stiff Person Syndrome (SPS) is characterized by body stiffness, which extends to the centromelic points of the muscles. Sufferers adopt a lordotic or kyphoscoliosis position when walking.
During the initial stages, patients experience pain in the back and loins (the area of ​​the back between the chest and the buttocks), sleep disturbances and a feeling of sudden fatigue, aggravated by intense emotional stress. The patient’s walking becomes progressively more difficult and impossible in the final stages, and at the same time disorders of swallowing, phonation and painful muscle contractions appear.
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“He’s doing everything to recover,” Dion’s sister Claudette recently said. “She’s a strong woman.”
Documenting over a year of the famous singer’s life, including “unprecedented” private moments, the documentary is sure to be shocking. “I Am: Celine Dion” will be directed by Academy Award-winning director Irene Taylor and will be shown on Prime Video.
Source :Skai
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