He stresses that “the number of people with rare diseases in the EU is estimated at 30 million, while the number of rare diseases is estimated at 6-8 thousand”
The preparation European Action Plan For rare diseases, the MEP and representative of the ND Eurogroup, Dimitris Tsiodras, is asking for a question to the European Commission.
Specifically, and on the occasion of the recent adoption of the resolution for rare diseases by the World Health Assembly, he asks the European Commission how it intends to help improve early access for patients with rare and unacceptable diseases in diagnosis, treatment and support.
Mr Tsiodras stresses that ‘the number of people with rare diseases in the EU estimated at 30 million, While the number of rare diseases is estimated at 6-8 thousand ”, noting that the diagnosis can last over five years, while many people with rare disease never receive early or sufficient diagnosis.
He stresses that “the high cost of treatments, unequal access to treatments and limited availability and geographical dispersion of experts and expertise centers across Europe have resulted in people living with a rare disease having difficulty access to care and support.”
Finally, making a special reference “to the Greek prevention program (” prevent “) and the thousands of lives saved thanks to these preventive exams,” he concludes the Commission how he intends to provides technical support To strengthen and implement national policies for rare diseases and how to enhance the cooperation, networking and exchange of knowledge between specialized health care providers to improve expertise in the field of diagnosis.
Source: Skai
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