A popular Youtuber and influencer who suffered from “Benjamin Button” disease, died at the age of 15. Antalya Rose, from Texas, was diagnosed early, a genetic condition also known as “Benjamin Button” disease, when she was three months old.
The very rare disease, which affects less than 500 children worldwide, causes premature aging in the body and has an average life expectancy of 13 years. As it grew, Antalya became known on social media, gathering 2.91 million subscribers on YouTube and 379,000 followers on Instagram.
On January 12, her family announced that the young girl had passed away, stressing that “she is no longer in pain.”
This one hurts. ???? What an amazing girl she was. RIP Adalia Rose ???????? pic.twitter.com/Fho7xFBQDO
— MicheleWA (@ReporterMichele) January 13, 2022
The post:
“At 19:00 Antalya Rose Williams left this world. “She came to him quietly and left quietly, but her life was anything but quiet,” the teen’s family wrote on Instagram. She reached millions of people and left an indelible mark on everyone who knew her. It no longer hurts and now she dances listening to the music she loves. I really wish it were not this reality, but unfortunately it is. We want to thank all those who loved and supported her. Thanks to all her doctors and nurses who worked for years to keep her healthy. “Her family would now like to mourn this huge loss.”
Antalya’s mother, Natalia, told the New Zealand Herald in 2018 that doctors realized something was wrong with the baby, a few months after it was born. The doctors realized that his growth was not normal and that the skin on his abdomen was very tight and looked different. At three months the doctors came to the diagnosis and the baby soon began to lose his hair. His veins became visible and his skin thinned.
“I was an unmarried mother at the time, so when I was diagnosed I was alone. “It was just her and me and I felt really lost,” said Natalia.
Then she met Ryan and Antalya had brothers.
“We do not use the word ‘progression’ very often, we just treat her like a normal 11-year-old and try to give her the best life possible,” Ryan said.
Antalya had difficulties and sometimes said that she wanted to look like everyone else and be able to do what everyone else did.
Natalia said that her daughter was “unruly” and that she really enjoyed watching her grow up.
Antalya’s success on YouTube was fortunate. Her dance videos went viral in 2015. In December 2019, Jennifer Lopez’s designer Michael Costello presented the YouTube star with two dream dresses for her 13th birthday.
One of the dresses was that of Princess Jasmine from the movie “Aladdin”. The other, was a fuchsia dress, like the one JLO would wear on the red carpet.
New York Post
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